So today was my happy hour before my bi week, which falls on haloween weekend. That's already some good news, and the better news is that Bili is at a cool 1.0!!!!
Go Bili :-)
LOVE
Friday, October 22, 2010
Thursday, October 14, 2010
Here's An Update About My Nephew Matt
A Journal entry from Matt's dad, Don:
Hello everyone, It's with a cautious heart that I share today's news, yes it's good :)
I met with Dr Dorn today, Matt's radiologist, and we reviewed the X-ray from yesterday as well as briefly discussed the MRI of Matt's brain.
The results are 'not common'. Normally it takes radiation quite some time to take effect as in 3-4 weeks with the major results coming @ about 6-8 weeks. Quite simply the tumors are melting, we don't know if it's the radiation, the cesium, the hydrogen or a combination of everything but his hilem, the area between his lungs that was swelling and putting pressure on his vena cava has shrunk already by ONE THIRD! Matthew asked Dr Dorn if this was normal and he said "very often no, it normally takes quite a bit more time". WHO CARES! It's shrinking!
On to the brain, Matthew had a MRI with contrast. Contrast is used because of the robust activity of cancer cells it's uptake is much quicker of the contrast so it "lights up" on the scans better. They were able to see the lesions in his brain but there was NO UPTAKE of the contrast. This would indicate the tissue is dead and not active!
All of this news is such an incredible turn from where we were a month ago. They were telling us to "go home" , "take a vacation"!
As you can imagine as a parent it's very hard to manage this kind of information and stay balanced. We will continue to move on and it appears that the bone marrow/stem cell transplant is looming on the agenda if all continues this way.
Matthews spirits are amazing! He is SO HEALTHY! Jumping around, went for a walk with mom yesterday and broke into a run across the park in the grass. He's wrestling with Cargo and playing with all the energy and vigor of a 13 year old.
Thank you to everyone for all your prayers, support, generosity, compassion, thoughtfulness, and love. This experience has taken all members of this family to some incredibly scary and incredibly wonderful places all @ the same time...
http://www.caringbridge.org/visit/matthewwilkins
LOVE
Hello everyone, It's with a cautious heart that I share today's news, yes it's good :)
I met with Dr Dorn today, Matt's radiologist, and we reviewed the X-ray from yesterday as well as briefly discussed the MRI of Matt's brain.
The results are 'not common'. Normally it takes radiation quite some time to take effect as in 3-4 weeks with the major results coming @ about 6-8 weeks. Quite simply the tumors are melting, we don't know if it's the radiation, the cesium, the hydrogen or a combination of everything but his hilem, the area between his lungs that was swelling and putting pressure on his vena cava has shrunk already by ONE THIRD! Matthew asked Dr Dorn if this was normal and he said "very often no, it normally takes quite a bit more time". WHO CARES! It's shrinking!
On to the brain, Matthew had a MRI with contrast. Contrast is used because of the robust activity of cancer cells it's uptake is much quicker of the contrast so it "lights up" on the scans better. They were able to see the lesions in his brain but there was NO UPTAKE of the contrast. This would indicate the tissue is dead and not active!
All of this news is such an incredible turn from where we were a month ago. They were telling us to "go home" , "take a vacation"!
As you can imagine as a parent it's very hard to manage this kind of information and stay balanced. We will continue to move on and it appears that the bone marrow/stem cell transplant is looming on the agenda if all continues this way.
Matthews spirits are amazing! He is SO HEALTHY! Jumping around, went for a walk with mom yesterday and broke into a run across the park in the grass. He's wrestling with Cargo and playing with all the energy and vigor of a 13 year old.
Thank you to everyone for all your prayers, support, generosity, compassion, thoughtfulness, and love. This experience has taken all members of this family to some incredibly scary and incredibly wonderful places all @ the same time...
http://www.caringbridge.org/visit/matthewwilkins
LOVE
Tuesday, October 12, 2010
Bili-Tube Change Number ???
Well after a great weekend with Talla n' the gang it was time for an oil change. On Monday I visited my pals at Club Scripps IR to see if it was time for my Bili-tubes to be replaced.
Recently I've been keeping myself unplugged for like 22 hours+ every day, but that doesn't mean I am blind to the tubes...and sure enough I did.
So here we are after 24 hours at LJ Club Scripps with Maman Afsaneh by my side, we return with some great news (woohooo)... Well Dr B told us that my Blood Cancer Marker is down at a cool 7.6 (3 is normal)...
Exciting news and I feel fantastic... Now it's almost time to start buying the flight tix and plan where we should visit next...
LOVE
Recently I've been keeping myself unplugged for like 22 hours+ every day, but that doesn't mean I am blind to the tubes...and sure enough I did.
So here we are after 24 hours at LJ Club Scripps with Maman Afsaneh by my side, we return with some great news (woohooo)... Well Dr B told us that my Blood Cancer Marker is down at a cool 7.6 (3 is normal)...
Exciting news and I feel fantastic... Now it's almost time to start buying the flight tix and plan where we should visit next...
LOVE
Saturday, October 9, 2010
About Time To Meet RN
Well, I think it's time to show off Rebecca, aka RN, Team AIC, and Bella. Becca's one of my biggest fans, PJ's official food taster, and an honorary Persian...enjoy :-)
Wednesday, October 6, 2010
Hey Hey Hey What A Great Day!
Well, it's been a great day. I started it by driving up to Anaheim to join RN for a real estate convention which revolved around technology...part of my training to go out of my comfort zone and learn all I can. The scene was interesting, but not as interesting as the news I got from Dr. B and my scans...and (drum rolls)...my physical insides is feeling as good as my soul.
Everything is shrinking and disappearing :-) my limp nodes are back to healthy normal...my lungs are tumor free...and all my other Tumors have shrunk 33% to 66%,Yay!!!
Well with this news in my heart I called my mom, shed some tears, then grabbed RN's hand and headed straight to Disneyland...yes the happiest place on earth, to celebrate life.
Imagine this, in my DNA there's a cure for this type of cancer...imagine how I can help save lives after my healing path has come to an end...what a great path! What a great day...what a beautiful life...sharing is caring and healing is divine. I'm so happy that I can share this news with all of you.
LOVE
Everything is shrinking and disappearing :-) my limp nodes are back to healthy normal...my lungs are tumor free...and all my other Tumors have shrunk 33% to 66%,Yay!!!
Well with this news in my heart I called my mom, shed some tears, then grabbed RN's hand and headed straight to Disneyland...yes the happiest place on earth, to celebrate life.
Imagine this, in my DNA there's a cure for this type of cancer...imagine how I can help save lives after my healing path has come to an end...what a great path! What a great day...what a beautiful life...sharing is caring and healing is divine. I'm so happy that I can share this news with all of you.
LOVE
Tuesday, October 5, 2010
Bats Aren't Scary Afterall
Something really cool happened to me last night...
Behind my house we have a very serene tropical path filled with bridges (ok just 2 of them), a waterfall and some great energy.
Since we have a competing scene in-front of our patio...the beautiful RB Inn Golf Resort followed by rolling San Diego hills and 2 crosses on either side looking over us...I only discovered the waterfall by accident about a month ago when I decided then to put that extra stride in my snail like walking pace and found my favorite place to meditate because of it.
Usually my morning meditation is started with a strong espresso shot that I take with me on the waterfall walk and my nightly meditation to the waterfall lets me enjoy some Bob Marley grooving steady along with the flowing streams alongside the waterfall.
Well last night as I was finishing my Om I was startled by a bat that barely missed my face by a wingspan...damn that scared the shit outta' me but now that I look back and actually read about bats online - symbolically it's the best thing that could have happened to me.
Here's how it went...I was just finishing my last Om to the unified consciousness and all of a sudden this dark beast of a 1/2 fool long bat comes and makes me wonder if I have to change my underwear now!
So here's what a bat means:
Bat - A symbol of good fortune in the East
Bat Totem - Awakening to New Horizons
A visit from the bat could signify time of change or transformation or heightened intuition.
Bat Totem Visitation - The bat totem can trigger change or transformation. Its visit can be a warning that change will soon occur and not to be afraid. Sometimes the bat is a symbol for facing ones fears.
Now that's a long way from my fortune-less fortune cookie back in May...now off to yoga...Ciao
LOVE
Behind my house we have a very serene tropical path filled with bridges (ok just 2 of them), a waterfall and some great energy.
Since we have a competing scene in-front of our patio...the beautiful RB Inn Golf Resort followed by rolling San Diego hills and 2 crosses on either side looking over us...I only discovered the waterfall by accident about a month ago when I decided then to put that extra stride in my snail like walking pace and found my favorite place to meditate because of it.
Usually my morning meditation is started with a strong espresso shot that I take with me on the waterfall walk and my nightly meditation to the waterfall lets me enjoy some Bob Marley grooving steady along with the flowing streams alongside the waterfall.
Well last night as I was finishing my Om I was startled by a bat that barely missed my face by a wingspan...damn that scared the shit outta' me but now that I look back and actually read about bats online - symbolically it's the best thing that could have happened to me.
Here's how it went...I was just finishing my last Om to the unified consciousness and all of a sudden this dark beast of a 1/2 fool long bat comes and makes me wonder if I have to change my underwear now!
So here's what a bat means:
Bat - A symbol of good fortune in the East
Bat Totem - Awakening to New Horizons
A visit from the bat could signify time of change or transformation or heightened intuition.
Bat Totem Visitation - The bat totem can trigger change or transformation. Its visit can be a warning that change will soon occur and not to be afraid. Sometimes the bat is a symbol for facing ones fears.
Now that's a long way from my fortune-less fortune cookie back in May...now off to yoga...Ciao
LOVE
Monday, October 4, 2010
Guess Who's Got His GrOOvE Back
Wow what a great day...week...month...
Starting last week I finally feel like I'm back, better/smarter than ever. Here's what's been going on with me...on Saturday & today I joined the easy spirited in my local yoga class! It's such a joy to be able to do so after almost 4.x months.
And on Saturday I was RN's +1 at her friends wedding where we were not only the best looking couple - but also the best dancers on the floor...I always knew I didn't need alcohol to channel my inner 'dances w/ the stars' self :-) and my partner...WOWZERS!!!!
Not to mention last Tuesday/Thursday I started biking, jogging, and lifting some whopping 8lb dumbbells at the gym...I can probably lift much heavier weights, but gotta' be careful about straining my center core...after all I still have 2 plugs sticking out of me, although there's some great news about that too...since about 2 weeks ago I've been unplugging myself for more than 20 hours each day...another step closer to unplugging from the cancer matrix...
Imagine that, 2 months ago I was walking at a snails pace and only with a cane and today I'm feeling $$$. It's amazing what good care and positive intentions can do for us all.
Oh and tomorrow I have my next CT scan...please keep praying for me as I can feel each and every one of your thoughts and words...to tell you the truth I really don't feel like I have cancer anymore...and as soon as the docs agree I'm gonna' start leading my own yoga class and more!
So a few days ago a young neighbor friend of mine asked me a profound question which I've never actually verbalized and extended on to others...her question was simple...it was "How did you feel when it all happened?"...damn that's a good question, now for the answer...after some words from our sponsors...To Be Continued.
LOVE
Starting last week I finally feel like I'm back, better/smarter than ever. Here's what's been going on with me...on Saturday & today I joined the easy spirited in my local yoga class! It's such a joy to be able to do so after almost 4.x months.
And on Saturday I was RN's +1 at her friends wedding where we were not only the best looking couple - but also the best dancers on the floor...I always knew I didn't need alcohol to channel my inner 'dances w/ the stars' self :-) and my partner...WOWZERS!!!!
Not to mention last Tuesday/Thursday I started biking, jogging, and lifting some whopping 8lb dumbbells at the gym...I can probably lift much heavier weights, but gotta' be careful about straining my center core...after all I still have 2 plugs sticking out of me, although there's some great news about that too...since about 2 weeks ago I've been unplugging myself for more than 20 hours each day...another step closer to unplugging from the cancer matrix...
Imagine that, 2 months ago I was walking at a snails pace and only with a cane and today I'm feeling $$$. It's amazing what good care and positive intentions can do for us all.
Oh and tomorrow I have my next CT scan...please keep praying for me as I can feel each and every one of your thoughts and words...to tell you the truth I really don't feel like I have cancer anymore...and as soon as the docs agree I'm gonna' start leading my own yoga class and more!
So a few days ago a young neighbor friend of mine asked me a profound question which I've never actually verbalized and extended on to others...her question was simple...it was "How did you feel when it all happened?"...damn that's a good question, now for the answer...after some words from our sponsors...To Be Continued.
LOVE
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