Hi Team Amir! YES it's me the guy who hasn't posted for a little while...The past few days I've been at the hospital and in the process of calibrating my current Mr.c treatment plan...
Today I had a liver biopsy for genetic testing with new Chemo options and although the last Chemotherapy helped stabilize me, it didn't shrink (nor grow) the tumors - so now just like a boot-strapped startup business I have to go into the boardroom and meet with my partners to come up with a new strategy.
The first strategy change happened last week when I retired my old Oncologist Dr B1 and found a new Oncologist - Dr. B 2 (now ranked as Dr. B 1)...
Dr. B 1 is a very well known Oncologist with AWESOME bed-side manners...and that goes a lllllooonnnng way when you're sailing in uncharted waters.
For the next few weeks Dr. B 1 has put me on a pill form of Chemo so that I have a constant therapy in my blood stream to help me heal, instead of a shock every 2 weeks like before.
All these changes are of course very new to me and sometimes very very scary, but you know what - I have a little secret for success that I'd like to share with you...the secret is my little nephew Matt who has been healing himself from cancer for the past 3 years...did I mention he's 12 years old?
Matt is one of my greatest inspirations while going through treatment and whenever I feel lost or low it helps to remind myself that Matt has gone through things none of us can imagine at his age and, if he can do it, well then I can do it too! This is why Matt is my hero.
Below is a post from Matt's journal that I want to share with all of you. Please remember that life is cyclical and by helping one person you will also be helped in magical ways.
LOVE
---
We expect to hear all about your memorable stories that were shared over dinner. :)
Matthew is in recovery and not awake yet. We met with the both his oncologist, Matt Hansen as well as the nuerologist, Bruce Cherney. The pathology came back and confirmed it was tumor in the brain, same damn ewing's bastard as the others. We will meet with the Brain cancer team tomorrow to discuss what options are available to us now and of course we will be up all night researching on our own. Richelle and I are considering treatment in Germany where they use DMSO & Cesium Chloride as the treating agent. Ronald Reagan went there for cancer treatement as well as Elizabeth Taylor. The stem cell transplant is also still on the menu.
We had SUCH a wonderful start to the day and even though the middle was hard it's going to be a nice finish because we will go in and be with Matt here in a little while and he will be so happy this part is over. We know that there are many battles still yet to be decided and fought but if we have learned anything it's that there will also be precious moments for each and everyone of us along the way. We will battle the hard ones together and we will laugh & love during the close ones.
Live in this moment right now. Be present and aware of the people around you, you never know what tomorrow will bring.
:-)
Thank you all so much for your kind loving support, all the visitors, Matthew really appreciates it all. Please note he loves loves loves when me or mom sit and read your posts from the guestbook. It makes him feel good and no alone knowing there are so many concerned loving people cheering for him and so do we. Today he didn't want me to read the posts to him.... he was feeling pretty low @ that particular time... BUT THEN........
Amir???!!! ( His Unlce and hero also battleing cancer in San Diego ) ....... I told him "Amir left you a message, and he said READ IT READ IT" He smiled and cried after that and said "I love him". I asked if he wanted me to read anymore and he then wanted to hear them all. Diane? Marcie? Whitwells? Mithra? All of you!! thank you so so much for bringing the smile to our beautiful sons face by your kind and loving words. ---
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Hi Amir:
ReplyDeleteI too am inspired by Matt and you. It's takes an evolved person to realize the beauty in the things that have taken place, and you do. Thank you for sharing how we can all affect change in our lives and others. I love you.
Mithra
....and now Matt is our little secret too! Will be sending prayers and positive energy his way as well. What a brave little guy. He also has you as his hero. "That which the fountain sends forth returns again to the fountain".
ReplyDeleteChange is always scary as we fear the unknown...Soon it will be known and recognized as what Kicked the #*$@#% crap out of C! ;D
MUAH!
well, now the secret is out. This is a tough time for the whole family. Amir, you love, care and feel a lot for Matt wanting to help him while you deal with your C......I'm sure, both of you are brave and strong enough to come out of this with VICTORY.
ReplyDeleteYou both are dear children of GOD, your lives are in hands of GOD and I believe in miracles.
Big life's lessons are in form of big challenges, you and Matt beside of your youth are learning BIG lessons because God knows you can handle it. This is your time to show your strength to life, god and everybody.......We are in it to win it.......love you both.
I have to say this even I know tomorrow he is going to kill me!!!
ReplyDeleteHe just woke up to go to bathroom, heard Reggae music which is playing from his laptop. He started to pole-dance with his IV pole.
OH MY GOD, what did you do to my dear son, Amir......:-)
Of course, he is under influence, no worries!!!
Amir Pole dancing...you awesome Amir. Love you. I cannot wait for the day that I hear that all of the members of your family with C have recovered. You all need a vacation. I was told by a friend that she knows several people with advanced c who were told to cut out meat completely from their diets and started to feel much better and their prognosis changed drastically. last time I saw you Amir joon, I remember you said you were on no food restrictions. is that still the case. If it is you might want to consider going vegetarian.
ReplyDeleteI am glad you changed your doctor if he was not giving you a good feeling. Your doctor should have confidence in his work and you and always be positive. I am for team Amir and the new Dr. B1.
I am glad you feel better and shared your thoughts with us.
HI Amir jan, thank you for posting again. We all want to know how you are doing . We think of you every day and pray for the best . please continue writing.
ReplyDeletegood to hear from yourself again :)
ReplyDeletewould like to visit you, too. but i´m still waiting in line... and i guess when it´s my turn you have already recovered :)
that´s even better. we can go out and have some drinks then - together in honolulu, no matter what afsaneh says, narges didn´t win the trip to hawaii with you. moha and me won! ;)
Sending BIG BOOSES to you Amir joon and Afsaneh and Talla and the rest of the family from sunny Berlin. You still owe me a visit here!
ReplyDeletehaha, Amir was pole dancing! Go boy go!
ReplyDelete